Anna: What information should we include for clinicians?

[ruthmoog]

We will have a section called What we do which will include the background of the group, introductions to the groups organisers, and testimony quotes from participants. It will also aim to provide information to satisfy this scenario:

as a clinician, I want to know about SfBs outcomes and participant's experiences so I can refer any patients that might benefit

• Is there any info which would be helpful to add to this section quoted below?
• Are the existing testimony quotes sufficient for this purpose, or is something else needed?
• Is there anything else that would be useful for clinicians to know which I haven't taken into account?

Here is the current draft of the relevant section:

What we do

“
I was aware that lots of people have problems with their breathing that go on for years and years and there's only so much that drugs and inhalers can help with.
—Dr. Anna Moore

Singing for Breathing has been running since 2017 and started at the Royal London Hospital. It was set up by Dr Anna Moore, a respiratory doctor at Barts Health, who recognised the need for a group that could offer therapeutic activity to help with breathlessness management, along with social support on a regular, long-term basis, free of cost for participants.

[include video used on the crowdfunder]

We have a growing evidence base for the management of breathlessness, particularly in chronic lung disease, and the potential to significantly improve health equity.

...

“
It's very good for socialising, and it's a benefit for my lungs.

“
Singing for Breathing has become an integral part of my personal well-being routine.

“
I can now walk without panting and along with a better diet and loss of weight have reduced my blood pressure to a point where my doctor has taken me off blood pressure medication.

“
The sessions have really helped me focus better on my breathing.

“
It's good for your mental health, and you're not alone with your condition.

“
My asthma has finally come under control, I've stopped snoring and I'm using my reliever inhaler less.

“
I have kept up a fairly active social life by joining other groups, though singing was the first.