Patients Like Me

[bennidi]

Homepage

A platform that follows very similar ideas but with a focus on very severe conditions. They have cooperations with pharmaceutical companies and are a (not so much) for-profit organization. The UI is a bit old and not very user friendly but there is a rich set of functionality available.

[bennidi]

Some very interesting articles show how patients like me has already helped:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2553248/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2956230/
http://www.fiercebiotechit.com/story/patientslikeme-study-challenges-prior-als-claims/2011-04-25
http://healthaffairs.org/blog/2013/02/07/the-patient-engagement-pill-lessons-from-epilepsy/