From 4fd6878e1209abc05eeb0b96d875d1b16ffd6c48 Mon Sep 17 00:00:00 2001 From: marionbarker Date: Thu, 28 Nov 2024 07:59:22 -0500 Subject: [PATCH] update wording and links --- docs/edition/2024-11-27.md | 9 ++++++--- docs/index.md | 9 ++++++--- 2 files changed, 12 insertions(+), 6 deletions(-) diff --git a/docs/edition/2024-11-27.md b/docs/edition/2024-11-27.md index 576d31a..8beb4db 100644 --- a/docs/edition/2024-11-27.md +++ b/docs/edition/2024-11-27.md @@ -90,17 +90,20 @@ Each presentation highlighted the critical role of mental health in diabetes car * Dr. Bob Gabbay ([Joslin Diabetes](https://joslin.org/ ){: target="_blank" }) addressed mental health, GLP-1 RA access, and healthcare delivery shortages. He praised the "revolutionary" impact of GLP-1 RAs but noted supply and insurance barriers, suggesting workarounds for T1D use given regulatory hurdles. He urged optimizing endocrinologist roles and team-based care. * Drs. Kathryn Evans Kreider ([Duke Univ.](https://medicine.duke.edu/divisions/endocrinology-metabolism-and-nutrition ){: target="_blank" }) and Alicia Warnock ([Stability Health](https://stabilityhealth.com/ ){: target="_blank" }) shared efforts at their institutions to improve healthcare efficiency and quality. * Mary Jane Roche ([Diabetes Link](https://thediabeteslink.org/ ){: target="_blank" }) discussed the [iHero](https://www.uhhospitals.org/uh-research/department-research/endocrinology-research/diabetes-and-metabolic-research/clinical-trials/ihero ){: target="_blank" } randomized controlled trial, a collaborative project between The Diabetes Link and University Hospitals to develop a financial toolkit for young adults with type 1 diabetes. The study seeks to assess how targeted financial education can improve health outcomes for this population. -* Dr. Inge Van Boxelaer ([Diabetotech](https://www.diabetotech.com/ ){: target="_blank" }) presented an online platform offering video courses on diabetes technology. The goal is to empower individuals, caregivers, and healthcare professionals with the latest insights on glucose sensors, insulin pumps, and AID, fostering better diabetes care for all. Some modules, including those for [OS-AID systems](https://www.diabetotech.com/aid-systems ){: target="_blank" }, are free. +* Dr. Inge Van Boxelaer ([Diabetotech](https://www.diabetotech.com/ ){: target="_blank" }) presented an online platform offering video courses on diabetes technology. The goal is to empower individuals, caregivers, and healthcare professionals with the latest insights on glucose sensors, insulin pumps, and AID, fostering better diabetes care for all. Some modules, including those for [OS-AID systems](https://www.diabetotech.com/free-courses){: target="_blank" }, are free. * The [Tidepool+](https://www.tidepool.org/providers ){: target="_blank" } risk-based dashboard for patient care was presented by Brandon Arbiter. This will help HCPs be able to proactively identify patients whose data indicates they need more intensive help with management or supply issues. ### Community-Based Advocacy -* Susannah Fox (author of [Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care](https://mitpress.mit.edu/9780262553001/rebel-health/ ){: target="_blank" }) emphasized the role of online communities and grassroots initiatives in addressing healthcare challenges. These efforts help meet unmet needs, fight misinformation, and improve access to care and resources. The book explores how patients and caregivers are driving innovation and advocating for solutions based on their lived experiences, exemplified by movements like #WeAreNotWaiting. It focuses on empowering patients to take an active role in their healthcare, challenging traditional hierarchies within the system. and last, but certainly not least, Automated Insulin Delivery (AID) +* Susannah Fox (author of [Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care](https://mitpress.mit.edu/9780262553001/rebel-health/ ){: target="_blank" }) emphasized the role of online communities and grassroots initiatives in addressing healthcare challenges. These efforts help meet unmet needs, fight misinformation, and improve access to care and resources. The book explores how patients and caregivers are driving innovation and advocating for solutions based on their lived experiences, exemplified by movements like #WeAreNotWaiting. It focuses on empowering patients to take an active role in their healthcare, challenging traditional hierarchies within the system. + +### Automated Insulin Delivery (AID) + * Dr. Anders Carlson ([International Diabetes Center](https://www.healthpartners.com/institute/centers/international-diabetes-center/ ){: target="_blank" }) advocated for early AID adoption in T2D, emphasizing its potential to improve management and reduce complications. He called for partnerships with primary care clinics and continued device innovation to meet T2D-specific needs. * A panel on the “Wild West” of open-source automated insulin delivery system (OS-AID) support, featuring our own Joanne Milo and Marion Barker, and Dr. Rayhan Lal ([Stanford Medicine](https://stanfordhealthcare.org/medical-clinics/diabetes-care.html ){: target="_blank" }), was moderated by Brandon Arbiter ([Tidepool](https://www.tidepool.org/ ){: target="_blank" }). Dr. Lal addressed the safety and efficacy of OS-AID, emphasizing that diabetes itself, not the system type, poses the primary risk. Dr. Lal continues to push for equity for users of AID systems. Joanne and Marion talked about the importance of peer-to-peer help found in the online community. The panel discussed the need to support OS- AID users, who should use open-source, and whether there should be some standards of training or ways of validating paid support services to supplement the volunteer community. * David Burren ([Nascence BioMed](https://www.nascencebiomed.com/ ){: target="_blank" }) discussed the capability of achieving fully closed looping with OS-AID and shared that while he has not bolused or announced meals since 2021, his A1C remains low (5.6) with TIR (time in range) >90% and TITR (time in tight range) >75%. * Kate Farnsworth shared news on the [Sequel twiist AID system](https://twiist.com/ ){: target="_blank" }, which uses the Tidepool Loop algorithm. -* Theresa Hastings unveiled the soon-to-be-released updated [Trio](https://diy-trio.org/ ){: target="_blank" }, the iPhone-based oref OS-AID app, which many of us are already benefiting from through an earlier release. +* Theresa Hastings reported what's in the works for the next version of [Trio](https://diy-trio.org/ ){: target="_blank" }, which she also shared in a recent LnL Open Mic. The innovations and focus on patient care at D-Data were truly inspiring, and we are excited to see the positive changes that will come from them. It was also a wonderful experience to meet more of our team and community members in person. Despite, for many, it being our first face-to- face meeting, the bonds we’ve built through close collaboration made it feel like anything but our first meeting! diff --git a/docs/index.md b/docs/index.md index 576d31a..8beb4db 100644 --- a/docs/index.md +++ b/docs/index.md @@ -90,17 +90,20 @@ Each presentation highlighted the critical role of mental health in diabetes car * Dr. Bob Gabbay ([Joslin Diabetes](https://joslin.org/ ){: target="_blank" }) addressed mental health, GLP-1 RA access, and healthcare delivery shortages. He praised the "revolutionary" impact of GLP-1 RAs but noted supply and insurance barriers, suggesting workarounds for T1D use given regulatory hurdles. He urged optimizing endocrinologist roles and team-based care. * Drs. Kathryn Evans Kreider ([Duke Univ.](https://medicine.duke.edu/divisions/endocrinology-metabolism-and-nutrition ){: target="_blank" }) and Alicia Warnock ([Stability Health](https://stabilityhealth.com/ ){: target="_blank" }) shared efforts at their institutions to improve healthcare efficiency and quality. * Mary Jane Roche ([Diabetes Link](https://thediabeteslink.org/ ){: target="_blank" }) discussed the [iHero](https://www.uhhospitals.org/uh-research/department-research/endocrinology-research/diabetes-and-metabolic-research/clinical-trials/ihero ){: target="_blank" } randomized controlled trial, a collaborative project between The Diabetes Link and University Hospitals to develop a financial toolkit for young adults with type 1 diabetes. The study seeks to assess how targeted financial education can improve health outcomes for this population. -* Dr. Inge Van Boxelaer ([Diabetotech](https://www.diabetotech.com/ ){: target="_blank" }) presented an online platform offering video courses on diabetes technology. The goal is to empower individuals, caregivers, and healthcare professionals with the latest insights on glucose sensors, insulin pumps, and AID, fostering better diabetes care for all. Some modules, including those for [OS-AID systems](https://www.diabetotech.com/aid-systems ){: target="_blank" }, are free. +* Dr. Inge Van Boxelaer ([Diabetotech](https://www.diabetotech.com/ ){: target="_blank" }) presented an online platform offering video courses on diabetes technology. The goal is to empower individuals, caregivers, and healthcare professionals with the latest insights on glucose sensors, insulin pumps, and AID, fostering better diabetes care for all. Some modules, including those for [OS-AID systems](https://www.diabetotech.com/free-courses){: target="_blank" }, are free. * The [Tidepool+](https://www.tidepool.org/providers ){: target="_blank" } risk-based dashboard for patient care was presented by Brandon Arbiter. This will help HCPs be able to proactively identify patients whose data indicates they need more intensive help with management or supply issues. ### Community-Based Advocacy -* Susannah Fox (author of [Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care](https://mitpress.mit.edu/9780262553001/rebel-health/ ){: target="_blank" }) emphasized the role of online communities and grassroots initiatives in addressing healthcare challenges. These efforts help meet unmet needs, fight misinformation, and improve access to care and resources. The book explores how patients and caregivers are driving innovation and advocating for solutions based on their lived experiences, exemplified by movements like #WeAreNotWaiting. It focuses on empowering patients to take an active role in their healthcare, challenging traditional hierarchies within the system. and last, but certainly not least, Automated Insulin Delivery (AID) +* Susannah Fox (author of [Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care](https://mitpress.mit.edu/9780262553001/rebel-health/ ){: target="_blank" }) emphasized the role of online communities and grassroots initiatives in addressing healthcare challenges. These efforts help meet unmet needs, fight misinformation, and improve access to care and resources. The book explores how patients and caregivers are driving innovation and advocating for solutions based on their lived experiences, exemplified by movements like #WeAreNotWaiting. It focuses on empowering patients to take an active role in their healthcare, challenging traditional hierarchies within the system. + +### Automated Insulin Delivery (AID) + * Dr. Anders Carlson ([International Diabetes Center](https://www.healthpartners.com/institute/centers/international-diabetes-center/ ){: target="_blank" }) advocated for early AID adoption in T2D, emphasizing its potential to improve management and reduce complications. He called for partnerships with primary care clinics and continued device innovation to meet T2D-specific needs. * A panel on the “Wild West” of open-source automated insulin delivery system (OS-AID) support, featuring our own Joanne Milo and Marion Barker, and Dr. Rayhan Lal ([Stanford Medicine](https://stanfordhealthcare.org/medical-clinics/diabetes-care.html ){: target="_blank" }), was moderated by Brandon Arbiter ([Tidepool](https://www.tidepool.org/ ){: target="_blank" }). Dr. Lal addressed the safety and efficacy of OS-AID, emphasizing that diabetes itself, not the system type, poses the primary risk. Dr. Lal continues to push for equity for users of AID systems. Joanne and Marion talked about the importance of peer-to-peer help found in the online community. The panel discussed the need to support OS- AID users, who should use open-source, and whether there should be some standards of training or ways of validating paid support services to supplement the volunteer community. * David Burren ([Nascence BioMed](https://www.nascencebiomed.com/ ){: target="_blank" }) discussed the capability of achieving fully closed looping with OS-AID and shared that while he has not bolused or announced meals since 2021, his A1C remains low (5.6) with TIR (time in range) >90% and TITR (time in tight range) >75%. * Kate Farnsworth shared news on the [Sequel twiist AID system](https://twiist.com/ ){: target="_blank" }, which uses the Tidepool Loop algorithm. -* Theresa Hastings unveiled the soon-to-be-released updated [Trio](https://diy-trio.org/ ){: target="_blank" }, the iPhone-based oref OS-AID app, which many of us are already benefiting from through an earlier release. +* Theresa Hastings reported what's in the works for the next version of [Trio](https://diy-trio.org/ ){: target="_blank" }, which she also shared in a recent LnL Open Mic. The innovations and focus on patient care at D-Data were truly inspiring, and we are excited to see the positive changes that will come from them. It was also a wonderful experience to meet more of our team and community members in person. Despite, for many, it being our first face-to- face meeting, the bonds we’ve built through close collaboration made it feel like anything but our first meeting!